contacts

Local SWANO contacts involved in the development of health and social care services appear in alphabetical order of organisation below, with the areas covered listed.

Contact details for other regional staff and volunteers e.g. fundraisers, local branch and member support etc, appear on each of the individual organisations' websites (links below in green)


National
Dystonia Society

Visit this page of the Dystonia Society website for a list of all groups and local contacts.

All of the South West
Epilepsy Action
Mark McDaid
Regional Services Manager South West
Email this contact

All of the South West
Headway
Ali Bazley
Regional Co-ordinator
Email this contact

Somerset & parts of former Avon area
Huntington's Disease Association

Shirley Bignell
Regional Care Advisor
Email this contact

Gloucs & parts of former Avon area
Huntington's Disease Association

Carol Dutton
Regional Care Advisor
Email this contact

Ann Pathmanaban
Regional Care Advisor
Email this contact

Devon, Cornwall & Isles of Scilly
Huntington's Disease Association
Charles Whaley
Regional Care Advisor
Email this contact

Kate Scurr
Migraine Trust
Email this contact

National: to be updated

Telephone: 01604250505
Fax: 01604 624726/638289
enquiries@mndassociation.org


Wilts, Gloucs and former Avon area
MND Association

National: to be updated

Telephone: 01604250505
Fax: 01604 624726/638289
enquiries@mndassociation.org


Cornwall, Devon & Somerset
MND Association

National: to be updated

Telephone: 01604250505
Fax: 01604 624726/638289
enquiries@mndassociation.org


All of the South West (except Dorset)
MS Society

Andrew Kemp
Regional External Relations Officer

Email this contact

Muscular Dystrophy (and other neuromuscular conditions)

1. The Muscular Dystrophy Campaign
Local and national contacts plus allied support groups for the different types of MD:

Website: www.muscular-dystrophy.org
Helpline: 020 7803 4800
Email: info@muscular-dystrophy.org .


2. The South West Neuromuscular Operational Delivery Network (SWNODN)
Covers a particular definition set of neuromuscular conditions specified by NHS England. Please refer to the website for local contacts and services:


All of the South West
Parkinson's UK
Neil Smart
Regional Manager
Email this contact

All of the South West
Parkinson's UK

Geoff King
Influence and Service Development Officer

Email this contact

All of the South West
Parkinson's UK
Jayne Dunn
Information and Support Manager for the South West Region
Email this contact

All of the South West
PSP Association
Jane Stein
PSP Specialist Care Advisor
Email this contact

All of the South West
Stroke Association
Danny Hames
Regional Manager
Email this contact
 

All of the South West
Tourettes Action
Ellie Dale
Support Officer
South West
Email this contact

Across the NHS South West, there are estimated to be nearly one million people living with some type of neurological condition. Check out the figures here: The number of people living with a long term condition in the NHS South West area

 

 

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